Useful contacts
Jo's Friends like:
About Health. This US website includes cancer information.
Cancer Research UK. Their site has a wealth of information about cancer and research. CancerHelp UK at www.cancerhelp.org.uk is the patient website of Cancer Research UK. They have a specialist nurse helpline, and a database of cancer trials in the UK.
Macmillan Cancer Support. This large UK charity seek to improve the lives of people affected by cancer by providing practical, medical, emotional and financial support. (In 2008 Cancerbackup became part of Macmillan). They provide information on cancer and its treatments through a website and telephone support manned by nurses. They also publish useful free booklets. Jo's friends collaborated with Macmillan on the booklet Understanding Cancer of Unknown Primary (ref: MAC11689) which can be found and ordered here . We would recommend also their book entitled: Recipes. This advises on poor appetite and weight loss as well as giving details of nutritional supplements and snacks and recipes.
Marie Curie Cancer Care - They provide free nursing care to terminally ill patients to allow them to die at home.
Maggie’s Centres. The aim of Maggie's Centres is to help people with cancer to be as healthy in mind and body as possible and enable them to make their own contribution to their medical treatment and recovery. There are patient "havens" in friendly and innovative buildings close to major cancer hospitals in: Edinburgh, Glasgow, Dundee, Highlands, Fife, Lanarkshire, Nottingham, Oxford, Cambridge, London, Cotswolds, Swansea. They overcome Plato's concern that in the treatment of the human body," physicians separate the soul from the body."
Penny Brohn Cancer Care. (the new name for Bristol Cancer Help Centre). The Bristol Approach is a combination of complementary therapies and self-help techniques. It is designed to work alongside medical treatment.
Sarcoma UK - They offer information & support about Sarcoma and its treatment in the UK. A small number of those initially diagnosed as CUP may be found to be Sarcoma.
Sue Ryder Care. Sue Ryder specialise in palliative and neurological care maximising and supporting patient choice and independence.
The Princess Royal Trust for Carers. The Princess Royal Trust for Carers is the largest provider of comprehensive carers support services in the UK.
The Brigitte Trust. The Brigitte Trust offer emotional support and practical help to the whole family when a life-threatening condition is diagnosed, and up to twelve weeks bereavement support. Working in Surrey with a sister organisation, Hospice Home Support in West Surrey/Hampshire.
The Stroud Foundation. A US - based organisation raising awareness of CUP which includes a Forum for patients and carers to interact.
If you value an organisation or website not listed here that could be of use to others please e-mail us. If you want to add a brief sentence by way of support we may add it e.g. “Organisation X proved enormously helpful in encouraging me to find something my husband could taste and gain nutrition from”. Mrs Y of Edinburgh.
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If you have a useful publication to add to the list or a term to add to the dictionary please contact us with your suggestion.
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Join others affected by
CUP to share information
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