Archive
Understanding CUP and its treatment
The articles below may help inform those who want more details about CUP from different perspectives. The Nursing Times article is a short and simple overview whilst the British Journal of Nursing article goes into more scientific detail. The article in Cancer Nursing Practice looks at the dilemmas and choices facing clinicians and CUP patients, particularly those with advanced disease. The MIMS article and the Oncology article are more technical but may be useful to some patients and carers as well as clinicians and researchers.
2011 Practice of Oncology chapter by Greco & Hainsworth
Sep 10 Cancer Nursing Practice
Oct 09 Cancer Nursing Practice
09 MIMS Oncology & Palliative care
Oct 08 British Journal of Nursing
Most of our information is web-based although we have a brochure for general information and fundraising purposes. A CUP booklet "Understanding cancer of unknown primary" is available from Macmillan Cancer Support on request.
The one page Q&A sheet below is easy to print-off and can also help with understanding CUP. Patient's Questions are posed by Jo's friends Director and Answers are given by oncologist Dr Harpreet Wasan.
Dr Mark Porter on BBC R4's Casenotes discusses CUP in this download (29 Mins) broadcast on 9 Feb 2010.
For personal views of Jo's experiences leading to the foundation of Jo's friends see Fighting the invisible cancer on CNN.com; and an article in Yours magazine. For a more specific discussion on the treatment approach using molecular profiling, see the New York Times article: Genetic tests may reveal source of mystery tumors . Click here for a short article in the Observer.
Annual Report & Accounts
The Annual Report and Accounts for Jo's friends can be seen on the Charity Commission website . The quickest way to find the information is to search under our charity no: 1119380:
2009 and 2012 London CUP Conferences
Programme, speakers, sponsors and the summary of the 2012 proceedings with the speakers' slides can be found here
For 2009 the individual speaker's conference transcripts are shown below:
DiagnosticStrategies (Varadhachary)
Research-Diagnosis and Treatment (Bridgewater)
Expert Panel-Molecular Profiling
Failing the CUP patient (Osborne)
Diagnosis by molecular classification (Erlander)
Archived e-Newsletters
News is sent out to our Supporters by e-mail
Message board
Endorsements
Not only is the website an essential resource but the Foundation has been instrumental in bringing together experts from across the world and encouraging the development of research to improve the outcomes of patients with CUP. Dr Andrew Fowell, Macmillan Consultant in Palliative Medicine
Thanks for your help. My family, son is also a doctor, have found it an invaluable resource from day 1 [of my husband’s CUP diagnosis]. Gillian (UK GP)
This website is a fantastic resource.
Dr Maurice Slevin, Medical Oncologist
Your website is such a good way of providing information that empowers the patient/carer.
Anne (former CUP patient)
A fantastic achievement as a resource!!!
Dr. H Wasan, Consultant and Reader in Medical Oncology
This is an excellent resource for patients and relatives. Keep up the good work!
Dr. David Farrugia. Consultant Medical Oncologist
Your website is such a good way of providing information that empowers the patient/carer.
Anne (former CUP patient)
A valuable patient support organisation that advocates much needed research and change for this neglected group.
Prof. Orest Mulka (former GP)
Many congratulations on establishing such a superb website. Dr Robert H Phillips, Consultant Radiotherapist and Physician in Medical Oncology
This site provides much needed and accessible help for CUP patients and their loved ones - I'm very, very impressed. Nicola James,
Macmillan Nurse Consultant
Your website and John were my life line when I was diagnosed with CUP in 2009. Jane, Australia.
You have established an important island in the UK which I hope grows with support from many.
Dr Tony Greco, Director of the Sarah Cannon Cancer Center
