Research study: patient and carer experiences of CUP

Posted on: December 1st, 2011 by John (Moderator) 12 Comments

The CUP Foundation is working with researchers at the University of Southampton and clinicians in Southampton University Hospitals Trust on a new research project. The project seeks to explore the experiences (good and bad) of CUP patients, and their family members and friends during diagnosis and treatment.

Very little has been published about peoples’ experiences of living with CUP or best practice in caring for, or supporting, them. By adding to existing knowledge, this study has the potential to inform the development of future care for CUP patients.

If you would like to help with the study, please contact the study researcher, Dr Rebecca Foster, at the University of Southampton, whose contact details are as follows:

R.M.Foster@soton.ac.uk
Tel: 023 80597581

Helping with the research would involve taking part in a telephone interview, or face to face interview if you live close to Southampton. The interview will be up to one hour long and will be held at a time convenient to you. Those who wish to may also be invited to take part in a focus group discussion.

  1. I am happy to be interviewed as part of this project. My contact details are 01706 226749. best wishes, Janet

    Janet says on December 2, 2011 at 2:47 pm
  2. John (Moderator)

    Thanks Janet – I’ll pass on

    John (Moderator) says on December 3, 2011 at 10:23 am

  3. John very vavaluable reserach. Both Mel and myself would be happy to particpate and be telephone interviewed. will contact Dr Foster
    hanks
    Peter

    Peter MAc says on December 3, 2011 at 10:27 pm
  4. lisarore

    i am happy to be interviewed too john my telephone number is 07814252424 lisa

    lisarore says on December 10, 2011 at 8:31 pm
  5. sallie

    I would have helped but really dont have the time to spend the hour on the phone. I wish them all the best with it. I should say my mum is in hospital, my partner having treatment for lung cancer and im coming towards the end of my treatment. Just wanted to say that so you know its not a case of not being bothered. Wishing you all the best with it.

    sallie says on December 12, 2011 at 9:09 am
  6. John (Moderator)

    No worries, thanks Sallie

    John (Moderator) says on December 12, 2011 at 7:11 pm

  7. Wishing you the best on this valuable project.
    I am happy to say that I was diagnosed with CUP 4 years ago. I am still here, active and healthy and enjoying my grandchildren.
    I dont know how I could help from here in Canada. I could answer questions by email.
    Dianne

    Arcticnurse says on December 20, 2011 at 6:07 am
  8. John (Moderator)

    Thanks Dianne – always good to hear from you. Its only a UK study I’m afraid – it is limited because the protocol had to go through various ethics committees to get approval (took years!) – the bureacracy of running any research is a nightmare these days and whilst I’m all for protecting the patient it has started to have a negative effect on research in this country.

    John (Moderator) says on December 20, 2011 at 10:24 am
  9. duvlin

    My wife, Julie has been interviewed this morning over the phone and I shall wait to see if they need my input.

    The results can only help raise the profile of the issue.

    duvlin says on January 6, 2012 at 5:15 pm

  10. I have failed trying to email Dr Rebecca Foster with my phone number – so here’s hoping it will get passed on via this site.07817672620 I’d like to help with the research into this horrible disease.

    Janet Bell says on January 29, 2012 at 6:18 pm
  11. John (Moderator)

    Thanks Janet – I’ve forwarded to Rebecca

    John (Moderator) says on January 30, 2012 at 10:08 am
  12. John (Moderator)

    Many thanks to all who responded. The recruitment phase now ended. Next step focus groups, analysis of the data and publication in early Summer.

    John (Moderator) says on February 1, 2012 at 10:16 am

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