After a year long battle against CUP secondary liver cancer my wife’s hard fought and brave battle has finally been lost. Her fight has been an inspiration to many people as she did not give in to the cancer and was determined to live as normal a life as possible. We did do many things over the year which has given us many memories to add to those we already had and she will remain in our hearts and minds for the rest of our lives.
I do know that Julie and I have spent a lot of time over the last year trying to explain Cancer Unknown Primary to people and how the not knowing make treatment harder to define. Most people can not believe that they can not find the primary and have taken time to try and understand to the problem. We did have a second opinion by the royal marsden and they did further testing on the biopsy using a new method and did give us a high probability of the primary which did help steer the treatment.
As we did not want flowers at the farewell many of our friends and family have chosen to make donation to the CUP foundation (I set up a just giving page linked to the CUP Pages) to try and help fund the research which is a credit to how my wife highlighted the problems.
I also have to thanks everyone on this forum and the CUP foundation site for all the support and information provided as it has been a godsend to find others that know about the issue around CUP which helped me gain a better understanding of the problems we encountered.
After the services at the church and crematorium we had afternoon tea (for 200+ that attended the farewell) as my wife had enjoyed many of these over the last year with her friends and family. During the tea my Nephew sang a song that meant a lot to me and said everything I felt and wanted to say. It is a modified version of Full of You by Rick Astley (he was topping the charts when we met 25 years ago) and I would like to share this with you all. I am going to try and see if we can get permission to use this to raise further funds for the much needed research and will let you know how I get on with this.
This is an awful time but I am determined to do everything I can to support others that are suffering as we have and use Julies fighting spirit as my inspiration.