First, I hope this post finds you and your family well. This seems like a great community from what I’ve read so far and I look forward to being a part of it, as my family and I dive head-first into this new world of CUP.
For the past several weeks, my dad (55 y/o male) has undergone literally every possible test to pinpoint the primary site of his cancer. We did not find it. The only place the cancer exists is in the bone, all throughout the skeleton. He had and was treated for bladder cancer in Oct. 2011, but we’ve been assured by several doctors there is no relation. The only other possible clue, was an elevated level in the pancreas from a tumor marker. But scans show no masses in ANY organs. So, basically what we’re dealing with is a Stage IV carcinoma of unknown primary, with metastasis to the bone.
We had a very tough doctor’s appointment this morning. Our doctor, who we are very pleased with, basically told us: a) Without chemo, my dad has “weeks” at most to live. b) The cancer is “incurable,” and chemo will be used to “prolong” his life for as long as possible. He threw out the figure of “6-8 months,” but only as a statistic. I don’t know what to think. This is very hard.
My dad is taking this very well, he’s so good with dealing with emergencies and crises. The rest of us feel like we’ve been hit by a truck. This all started with him complaining of back pain a few weeks ago, and suddenly it’s this catastrophic illness.
Has anyone else here had a similar case in their family (or themselves personally)? I can’t shake thinking about the prognosis…the word incurable…it’s so scary. I just want to keep thinking positively and hope that we can beat the odds.
Thank you to anyone with any words of support or encouragement.