There is a most informative and moving interview on Australian radio with our friend Jane who has done such great work in Australia. It is well worth listening to: it explains CUP very well from a patient and research perspective. As well as Jane, our latest Advisory Board Member Penny Schofield is part of the interview.

http://www.abc.net.au/radionational/programs/healthreport/cancer-of-unknown-primary/4118426

Good news that Jane has launched her website http://www.actiononunknownprimary.org and we wish her every success.

Dr Richard Osborne, one of Jo’s friends medical advisers, is speaking on  ” Faster, Better Diagnosis for Unknown Primary Cancer”  at the upcoming Emerging Molecular Markers for Cancer conference. The meeting will be held in Washington, D.C. at the Ritz-Carlton Hotel on August 23-24, 2011, as part of the Next Generation Diagnostics Summit.

We have added this new section as we want to (a) build up shared knowledge about how CUP is managed in different countries and (b) to establish a point of contact so that people in a country where we have an identified name can ask questions about the particular health systems etc. For example Jane in Australia and Tara in the USA are our first points of contact and will hopefully be putting in their contact details in subsequent posts.

If you would like to be the point of contact in another country please make contact. The sort of things we are interested in: are there CUP-specific specialists/clinics in your country; how are patients supported; what information is provided; what is usual practice in relation to new diagnostic tests/research such as genetic profiling; how can we push for a better deal for CUP patients in our respective countries; how can we join together to make this cancer more visible; how can we start making more noise to get funding for research; what is happening research-wise in the various countries; what new research is coming out which may be of value to people with CUP; where are there any conferences to raise the CUP voice; how can we be a vehicle to  disseminate new information, how can we be supportive to one another?