Hey there – diagnosed six months ago with Stage IV CUP, just started 3rd round of chemo – taxol/carboplatin combo -( had slightly positive progesteron marker on liver biopsy but nothing else definitive and all organs are clean except for the metatasis in liver and the lymph nodes) - once every three weeks then PET scan. So far – 30-40% overall improvement over intial PET scan before Chemo, now stabilized after 2nd round of chemo. What I really want to know – who is the leading ongologist in the USA for this? My oncologist is absolutly fabulous – but as you all know this can be a crap shoot. She is mostly breast cancer specialist, faculty at Georgetown University, heavily involved in clinical trials (which I can find none for CUP). Anybody who can help on this would be great. Keep strong everyone. We are not average – and that’s a good thing. Carol
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michelledarracott
Welcome to Meeting Space Carol – the trials and oncologists with an interest in CUP that I know of are at Sarah Canon Cancer Centre and MD Anderson. We have a number of people on this site from the USA so hopefully they may chip in with more.
If you look at this page http://www.cupfoundjo.org/research_and_resources/archive.html you can access an article which is the definitive way to treat CUP by Greco and Hainsworth (Sarah Canon) – you might want to make your oncologist aware of it.
BW
John
Welcome to our exclusive group. I found this site just after I finished my chemo. That was June 2008 and I’m still going strong.
Stay positive and enjoy life.
Dianne