Your story
It can sometimes be helpful to read another’s story as you face this difficult journey as a patient or carer. We reserve the right to make editorial changes. The sort of things you might wish to cover are:
- What were the symptoms, how were they identified and what happened in the referral process.
- How was CUP explained and what treatment routes were proposed?
- Was a private or Health Service route followed?
- How was the treatment managed; what side effects were suffered; where there particular issues with anything e.g. nutrition and how were they tackled
- Was counselling offered, were complementary therapies etc. available and were they helpful
- Anything else that might be helpful to others in a similar situation?
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Thank God for this forum! I cried when I found it!
The immense relief that I have obtained so far from just reading everyone’s stories on this site is incredible. Up to this point I have felt so very alone as no one could give me any advice, nothing to read, nothing to comfort me as I flounder..
At first I was tired of answering the questions about CUP to friends and some doctors but this website has helped me realize that the world needs to know about us.
Dianne (CUP patient, Canada)