What are we doing?
In addition to supporting patients and carers through this website, Jo’s friends are responding to opportunities to raise the CUP profile and support CUP research. Since becoming a charity in May 2007 we have become:
- Stakeholders in NICE's clinical guideline for CUP - the instructions for all NHS cancer networks in England, Wales, and N. Ireland on the management and treatment of CUP patients. The Director of Jo's friends is also a member of the CUP Guideline Development Group. (This is a very thorough process which will come to fruition in July 2010).
- A member of the Research Reporting Group for a new multi-centre (Phase 2) translational and clinical CUP trial. Through Jo's legacy, increased by Jo's friends, we have supported this CRUK-funded research with some £15,000.
- Partners with Southampton University (School of Nursing & Midwifery), palliative care experts and the Macmillan Research Unit to undertake research into patients, carers and health care professionals experiences of CUP. The project which begins in October 2008 is supported by a £77,000 grant from the Dimbleby Cancer Care Research Fund.
- Involved with Macmillan Cancer Support in producing hard copy patient information on CUP for distribution to every cancer centre in the UK.
- A Member of Cancer 52 - the less common cancers alliance, an umbrella group representing the interests of lesser and rarer cancers. Cancer 52's work included representation on the Government's Cancer Reform Strategy.
- We ran the first international CUP conference which was held in London in 2009 bringing together members of the medical profession with an interest in CUP.
Message board
Gold, Frankincense and Myrrh. Gold is used in cancer treatment with radio frequency waves; extracts of Frankincense have been shown to be toxic to cancer cells; and Myrrh has been used in breast and prostate cancer.
Events
Kate and Rebecca’s half marathon run raises £2,000 through JustGiving
