Cancer disappeared from scan

This is the space for interacting with other patients, carers, family, or friend's affected by CUP. Visit this section with questions and comments that you have that other Jo's friends may be able to help you with; or that you may be able to help others with. Perhaps questions/ comments about diagnosis, treatment, and daily issues with such things as nutrition, getting help etc. You may also want to raise general issues about cancer diagnosis, treatment etc. or highlight current debates.

Moderator: John Symons

Cancer disappeared from scan

Postby JuneCourtney on Wed Sep 30, 2009 6:27 pm

My husband just got the good news this morning that his latest scan after a very aggressive course of chemo shows no signs of any cancer cells in his body. We realise this is probably just a reprieve until it attacks again but would like to know if the cancer does return will it be diagnosed as a brand new cancer from whatever part of the body it appears or will the original diagnosis of secondary lung cancer with unknown primary still be the case? We would also like to know if the new drug Low Dose Naltroxene would be beneficial to him in building up his immune system and warding off any future cancer cells?
JuneCourtney
 
Posts: 1
Joined: Tue Sep 29, 2009 11:26 am

Re: Cancer disappeared from scan

Postby John Symons on Fri Oct 02, 2009 7:24 am

Just wanted to thank you for posting the question - hopefully others will give their views to your question from their experiences,
John
John Symons
Site Admin
 
Posts: 54
Joined: Mon Sep 10, 2007 2:55 pm

Re: Cancer disappeared from scan

Postby ladybug13 on Mon Oct 26, 2009 10:42 pm

Hi June
I am very interested in your post as my partner who is 55 has been diagnosed with unknown primary with lung secondarys.He has had 7 cycles of chemo that have had better results than they thought it would and are now talking about doing a genetic test to do with bowel cancer(they think that his primary might be in the bowel but they cant find it)
I was so happy to read of your husbands fantastic news,long may it continue.Please keep us updated.So sorry that i cant help with any answers to your questions but i hope that someone else may have the knowledge that you need
Diane
xxxx
ladybug13
 
Posts: 1
Joined: Sat May 02, 2009 9:30 pm

Anybody still there?

Postby Kathy R on Tue Nov 17, 2009 2:43 am

Was so sorry to read about Jean V. I hope that was not the fate of those who used to post comments but have been silent for months.
I have been in the hospital so often since July and just got out again last week. The initial confinements were not directly related to CUPS but now it seems there is a problem with some lymph nodes compressing my Vena Cava causing my legs to swell and hurt. Fri the radiation oncologist said she did not believe radiation would be a viable option as it would have to be low dose (cause of my moderate doses in 2007) and would not reduce the size of the node(s) or move it from the VC. So now I have to talk to my oncologist about going back on chemo. Been off for months cause of proscrasinating about the spinal fusion surgery. I now have 3 compression fractures in my spine cause of severe osteoporosis and the degenerative disease has gotten worse on the lumbar spine. Seems only the surgeon thinks surgery, for some spinal stability, is a good idea. The other MD's don't seem to like the idea. "Quality"of life keeps popping up in conversation along with length of time and stress of rehab. Hope I'm wrong but it sounds like "the other shoe" may be falling and time is not going to be on my side. Within the next couple of weeks I am going to have a pain pump implanted in my spine.Had the trial last week and though I still had pain (they did not try for dosage but, rather, whether it would help. It certainly did. Felt better than I had in ages! Wasn't drowsy, didn't feel like a veil was over me, my appetite was good & the pain eased on the dose they used. Do any of you have a pain pump or know anyone who does?
Pray all is well with all of you who used to be on this site---thanks John (case I don't get a chance to say it later) for setting up a site like this to communicate-or just to vent.

Kathy
Kathy R
 
Posts: 16
Joined: Sun Jan 04, 2009 7:49 am

Re: Cancer disappeared from scan

Postby Arcticnurse on Fri Feb 26, 2010 12:05 am

Hi Kathy
I had posted for a while but I still check the site.
I am now ready to celebrate my two year anniversary of finishing Chemo. The last CT scan show no new sites.
I tell my friends that I am a CUP cake. I will have another scan in late April and then if all is well they will only repeat it annually.
Dianne
Arcticnurse
 
Posts: 20
Joined: Sun Jun 22, 2008 9:51 am


Return to Meeting friends

Who is online

Users browsing this forum: No registered users and 1 guest