by Kathy R on Tue Nov 17, 2009 2:43 am
Was so sorry to read about Jean V. I hope that was not the fate of those who used to post comments but have been silent for months.
I have been in the hospital so often since July and just got out again last week. The initial confinements were not directly related to CUPS but now it seems there is a problem with some lymph nodes compressing my Vena Cava causing my legs to swell and hurt. Fri the radiation oncologist said she did not believe radiation would be a viable option as it would have to be low dose (cause of my moderate doses in 2007) and would not reduce the size of the node(s) or move it from the VC. So now I have to talk to my oncologist about going back on chemo. Been off for months cause of proscrasinating about the spinal fusion surgery. I now have 3 compression fractures in my spine cause of severe osteoporosis and the degenerative disease has gotten worse on the lumbar spine. Seems only the surgeon thinks surgery, for some spinal stability, is a good idea. The other MD's don't seem to like the idea. "Quality"of life keeps popping up in conversation along with length of time and stress of rehab. Hope I'm wrong but it sounds like "the other shoe" may be falling and time is not going to be on my side. Within the next couple of weeks I am going to have a pain pump implanted in my spine.Had the trial last week and though I still had pain (they did not try for dosage but, rather, whether it would help. It certainly did. Felt better than I had in ages! Wasn't drowsy, didn't feel like a veil was over me, my appetite was good & the pain eased on the dose they used. Do any of you have a pain pump or know anyone who does?
Pray all is well with all of you who used to be on this site---thanks John (case I don't get a chance to say it later) for setting up a site like this to communicate-or just to vent.
Kathy