For Awareness Week, Merrilyn Thomas, who lost her daughter to CUP, has posted ‘musings’ about the disease and its impact on her blog: http://www.wordsmiththebook.com.
As she says: ‘It is a personal account of CUP – Megan’s story, my story. I have written rather more about it than I did in the book because, for me, the focus of the book was Megan’s poetry, not her cancer. But I have welcomed this opportunity to say a little bit more about what it is like to be the close relative of someone suffering from CUP.’