Why we exist
When a patient is diagnosed with cancer that has spread within the body (metastatic cancer), the primary site of the disease is not always obvious. Finding the origin of the cancer is important to define appropriate treatment.
When the origin of the cancer is not identified with confidence, through initial tests, this is described as Cancer of Unknown Primary site, or CUP.
Each year in the UK over 10,000 people are diagnosed with CUP. This is a higher incidence than known cancers such as pancreatic, ovarian, uterine, kidney, brain, cervical or blood (leukaemia) cancers.
The 10,000 people diagnosed with CUP each year in the UK would fill more than 25 jumbo jets
For some CUP patients the primary cancer will remain unknown and will never be identified. But for many of those diagnosed initially with an undefined or uncertain cancer the origin of the cancer will be found through further tests. Even when the primary site remains truly hidden and unknown, effective treatment may be found, and all those with CUP can experience remission.
Most people have never heard of CUP and find it hard to believe that in this scientific age the cause of the cancer spread can remain unknown. A cancer diagnosis is frightening for patient, family and friends. Not to know where this strange, invasive, disease has originated in the body is a double blow.
CUP has been described by a leading cancer doctor (oncologist) and researcher as the “orphan of the cancer world”. We exist to offer information and suppport to CUP patients, their families and friends; whilst raising awareness of this problem to stimulate action that will improve treatment.
Message board
Cancer expert, Dr. Tony Greco has become an adviser to Jo's friends. Dr Greco has an unrivalled international reputation for his work with CUP. For more details see "Who we are".
Endorsements
CUP is a neglected area. I am delighted to support the work of Jo's friends. This website is a fantastic resource.
Dr Maurice Slevin, Medical Oncologist
You have established an important island in the UK which I hope grows with support from many.
Dr Tony Greco, Director of Sarah Cannon Cancer Center (USA)
Already a fantastic achievement as a resource!!!
Dr. H Wasan, Consultant and Hon Senior Lecturer in Medical Oncology
Meeting Space
Join others affected by
CUP to share information
& gain support in a moderated forum
Events
Sporting challenges - marathons, bike rides - raise money for us using JustGiving
