Jo's Friends concept
Jo’s oncologist was informative and considerate but as Jo’s friend I always wanted more information to help “project manage” the different people involved - my view was that Jo and I were facing a battle together and needed all the information and support we could get to have a chance of winning.
We needed to be able to access and to manage information in our own time, in our own ways and at our own speed. I would have liked to have been able to exchange information and gain support from others in a similar position.
During the battle I turned to the Web for information and wished that I could find one site for CUP that provided comprehensible information and offered support; with links to other sites that were relevant for CUP sufferers. Instead I was faced with a mass of general cancer information from which I had to distil the information that seemed relevant.
When the battle was lost I wanted something done to end the problem of CUP. As a layman, it seemed absurd to me that in the 21st Century it was not possible to diagnose primaries or treat secondaries to gain significant remission from CUP.
Message board
Cancer expert, Dr. Tony Greco has agreed to be an advisor to Jo’s friends. Dr Greco of the Sarah Cannon Research Institute in the USA has an unrivalled international reputation for his CUP research, categorisation and treatment.
Endorsements
CUP is a neglected area. I am delighted to support the work of Jo’s friends. This website is a fantastic resource.
Dr Maurice Slevin, Medical Oncologist
Meeting Space
Join others affected by
CUP to share information
& gain support in a moderated forum
Events
Kate and Rebecca’s half marathon run raises £1,500 through JustGiving
